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July 8, 2020
Scleroderma Foundation NE Names Lindsay De Santis as ED
Lindsay DeSantis
Lindsay DeSantis
February 21, 2020 — Scleroderma Foundation New England, based in Topsfield that helps patients and their families cope with scleroderma while supporting research to improve treatment and find a cure, recently announced that Lindsay De Santis has been named executive director.

De Santis succeeds Jack Armitage, who served in the post for 10 years until his retirement this week.

"Lindsay’s enthusiasm from the day of her arrival in December has resulted in a new wave of ideas and energy for which this organization is poised," noted a statement issued by the board of directors of Scleroderma Foundation New England (SFNE).

It continued, "Lindsay’s business experience and energetic capabilities have shown that she can translate vision into meaningful action, moving an organization forward in alignment with current technology and reflection of constituent need. Already working energetically with the SFNE board of directors and support group leadership."

De Santis, who has 15 years of nonprofit management experience, previously served executive vice president of the Massachusetts Pharmacists Association. She also has worked with smaller nonprofit organizations as an independent consultant, guiding them to expand their reach and providing administrative support.

Earlier, she was an executive director at PRRI, an association management company, principally working with health and human services organizations.

“I am incredibly fortunate to have the opportunity to work with an organization that I have a personal connection to,” said De Santis. “My mother has been living with scleroderma for more than 20 years. I am excited at the chance to continue and grow upon the successes of SFNE to meet our mission to find a cure.”

De Santis said she is focusing her attention on streamlining many of the organization’s upcoming events, most notably the Patient Education Seminar taking place on April 4.

De Santis earned a Bachelor of Science degree in business administration from Salem State University.

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. There is no known cause or cure for scleroderma. Current treatments are geared toward managing a broad spectrum of symptoms.

The Scleroderma Foundation was formed in 1998 following a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. Today it has a nationwide network of 20 chapters and more than 170 support groups across the United States that provide patient education programs and facilitated meetings for patients and their families.
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